Wednesday, October 13, 2010

The Clinic That Knew More Than I Did

Let's go back to fall of 2006. I had just experienced a complete emotional breakdown from pushing myself for the past year well beyond any human breaking point. I tried to live and work like a normal person while infected with Chronic Fatigue Syndrome and my mind and body had finally given out, letting Fibromyalgia take over. I was sitting at home, disabled, unable to use my right hand or arm, in writhing, aching, constant pain, sleepless, anxiety shooting to the stars, not able to remember anything that I was doing from one minute to the next, wishing I could just die, incapable of leaving my house for more that 20 minutes at a time due to exhaustive fatigue, frantic with stress about my future...hell, I am surprised I could even remember how to breathe, that's what a mess I was! You all know what I am talking about, most of you have been there (or are there, bless your hearts!). Thankfully California was one of a few states that offered State Disability Insurance. I secured a month off work paid at a somewhat comparable rate to what I was currently earning because of the executive position I had the year before but had since given up. They base it off some strange formula and I lucked out. But as that month counted down and I regained some mental balance I was continuing to decline physically. It had been ruled, by diagnosis of exclusion, CFS & Fibromyalgia, but there was little to do about it. I would sit at the computer, desperately searching for some answers, a solution, a network, some support. I read the book From Fatigued To Fantastic at the recommendation of my chiropractor and it all made so much sense, seemed to fit my symptoms to a T. Clearly an exceptional doctor was needed to even begin to treat these conditions. But I did not know where to find a doctor like this!  The internet was useless, support groups were hard to find and a hassle to get to and there was so much conflicting garbage out there I could not tell what was real and what was a carefully disguised scam.

All I knew is that I had to figure out what was wrong with me and how to get better. There was something serious happening to my body and despite the pathetic brush-off of the medical community I was not willing to accept this was "all in my head" or symptoms of depression. For crying out loud folks, I could not grip a pen and write! That is not depression, that is something physically wrong! My research kept bringing me back to The Fibromyalgia & Fatigue Center. They are a chain of specialty clinics around the country that the author of From Fatigued To Fantastic, Dr. Jacob Teitelbaum, either endorsed or worked with at the time, I cannot remember which. He was a patient of both illnesses himself and had found all sorts of ways to test and treat the root causes, not just mask the symptoms with pharmaceuticals. Then my initial month on disability came to an end and I had to get it extended, for I was still as sick as a dog and there was no way on God's green earth I was able to go back to work. I was seeing a Psychiatrist and Therapist weekly I was such a mess, and that was just the emotional part! But my doctor did not understand why I still needed to be out of work because I was depressed. And this lit the fire under my ass to figure out how to get better or run the risk of watching the life my husband and I had been working so hard for flush down the toilet.

I picked the Las Vegas location because I had family to stay with there, set up an appointment, arranged for my mom to assist me and off I went. It was amazing! It was truly the first time I met a doctor that knew more about my ailments than I did! They did a thorough physical and extensive oral exam. They took 31 vials of blood! It was intense and exhaustive and extremely expensive. The MD part of it was just a small factor, it was the supplements! But my body was under such attack and was so depleted they were badly needed to build me back up. My adrenals were shot, thyroid depressed, testosterone non-existent and I had Human Growth Hormone levels of an 83 year old at age 29! I returned for a few follow-up appointments and did a few phone appointments as well. I improved, but there was no magic wand being waved and I was still disabled even though I could leave the house for longer amounts of time now. Eventually they started testing for viruses and bacterial infections and BINGO! That's what Leah had! I went on some heavy-duty drugs to flip the balance from virus on top of immune system to immune system squashing virus and recovered from CFS to the point that if I take care of myself I am in "remission". But one of the nasty little buggers had infected my central nervous system and lived there for so long it had inflicted permanent nerve damage and the Fibromyalgia was here to stay. I am so grateful for The Fibromyalgia & Fatigue Center, the family I had to stay with there, my mom for all her assistance and the credit card I was able to put it all on. Since I have become a "professional patient" (4 pancreatitis, CFS, Fibro & 2 strokes by the age of 33 qualify me for that title) I have learned a lot about health and wellness. I buy the supplements I need now at a fraction of the cost and know more than I ever thought possible about how to maintain a healthy balance in life. A lot of questions keep popping up about The Fibromyalgia & Fatigue Center, and for me it was more than worth it. I just would not have bought all my supplements from them had I known any better. But the doctor was amazing, I did recover significantly and was able to return to work and live a life of much better quality than I thought possible given my original prognosis.

Thanks for joining,
Leah

10 comments:

  1. I am just curious as to how much "roughly" it costs for this treatment? I just looked up the one here in my town and of course not even a mention of how much it would be about, but just said they had monthly payments and did not take insurance. *rolls eyes*. I have yet to be able to go back to work since July 2009, though have been applying for jobs since the day after I left my other job. I can not get unemployment nor can I get disability (they say I do not have enough work credits). We need for me to be working just to survive but I can not work due to this lovely illness. win/loss situation. Just curious!

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  2. I have an appointment at the Las Vegas center next Wednesday. I have been debating rather it is worth the money or not? They say my first visit will be $100 and all blood work can be billed to my insurance. The cost then are $500 a month I am assuming that does not include any supplements they want you to buy. Please give me your advise on how to make this a good experience for myself. Us it worth the money?
    Thanks so much for all you share, I love it!!!

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  3. oops Is it worth the money? =)

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  4. $500 a month????? Holy cow!!!! I dont have that kind of cash laying around. If I did.... I wouldnt need a job so badly LOL.

    But sadly...I think i have had all the blood work and testing they talk about done already through my wonderful primary, who worked very hard in determining what was wrong with me in the first place. I just dont think he really truely knows where to go next....

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  5. $500 a month Holy Cow is right! It must have changed quite a bit since I saw them in 2006-2007! The supplements were the expensive part. The Dr. visits were maybe (goin' off a Fibrates memory here) $350 for the 1st and $150 for the follow-ups? Call them up and find out exactly what $500 a month gets you, and let us know...that is high!

    Anonymous- I would bet a nickle your primary has not tested for for half of what the F&F Center does. It is very specialized and they acknowledge things modern medicine refuses to believe contribute. I know for sure I would still be as sick as a dog if I had not been treated for the HHV-6 that was the worst of the viruses I had. And they know how to treat them, too. And now with this XMRV... But lets do some more research and find out what that $500 a month gets...I am so curious!

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  6. my story is nearly identical to yours. I went to the one in Norwalk for 1.5 years. It was more like $350 a week! Sometimes more. They took 27 vials of blood on my 1st visit. The treatment was very effective and I think it saved my life, truly! But I had to stop going when the money just plain ran out. I now am working by phone with Keith Smith, the world renowned herbalist and healer. Someone reccomended him years ago, but I didn't go then. I wish I had. Affordable! Only $50 for the 1st appointment - (1 hr), and $10 for check ups! He told me he's not out to buy a Mercedes, hes out to heal the world. How's that?Do a search online and CALL HIM!

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  7. Thank you for that information!
    Leah

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  8. I have looked up the F&F center in Portland. My mother called and spoke with them after I told her about it. It cost 6k a year, at $500 and you can apply for medical credit through GE credit. Because she already has a couple of cards via GE credit, one for furniture and one for a sewing computer, and she has good credit, it would come out to $333 a month for her. This includes all the visits and such. But NOT the cost of the bloodwork/labs which we all know is what cost the most! and then of course the supplements and such. It is really rather expensive, and I cannot afford it myself. And I will not allow my mother to put herself in such financial hardship because I'm in pain all the time. The way I figure it is I'm not actually dying, I don't have cancer or such. So I'll live. It bites, it hurts. But if I can avoid it at all cost, I surely will. It is just too high a cost. They don't work with insurance companies, you have to bill them on your own if you want to try and get reimbursement from your insurance. But they won't work with them. They don't want to have to 'share' ie lose profits since insurance companies do not pay full cost. :'<

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  9. I am searching, like all of us for the HOLY GRAIL! Is it Truly out here? I will be the first to admit the absolute disgust, frustration and vile I am feeling for what and whom I have had to come across in the medical world! I am worse now than ever! The litany of symptoms and maladies I will not even begin to burden you with. However, an ongoing systemic infection x2, with serious symptoms has me on serious edge. One more specialist, resistance to the meds, and I am already bonkers! I have researched other types of practitioners within my state, yet I am very leery about getting ripped off, and plainly taken advantage of. Trust me, if it is happening in with the Doctor God's, imagine who may be lurking in other realms. So, how do you know who is legit? Money for most of us has been exhausted; many of us are disabled, on fixed incomes, etc. I am interested in hearing from all of you posting!

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  10. Twirliesin are you hooked up with The Fibromyalgia Fun House on Facebook? If not click my badge on the right and join us, lots of info. and lots of people willing to share.
    Blessings,
    Leah

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