The Fibromyalgia Fun House Is In Full Swing

11 days ago The Fibromyalgia Fun House birthed herself from my Facebook page and took off running on her own two feet. Since then it has been a wild ride of momentum-building and friend-making! I have to admit we are a pretty wacky bunch! We have navigated privacy issues (bring me the Abacus!) while attracting more and more newbies to the cause. We have laughed ourselves silly as Karen & Teresa (our resident Thelma & Louise) cast characters for their Alice In Wonderland play and Wizard Of Oz production. We have shared symptoms and remedies and side-effect concerns and more than a few times cheered each other up out of some pretty deep darkness. I know I have felt lighter and freer knowing I have a place to call my Fibromyalgia home. I even got the guts to post a Prednisone-volleyball-face picture. I am vain and insecure and you all should know what a stretch that was for me! And I don't know if everyone is still on their best behavior 'cause we are still in the honeymoon phase or what but we seem to be a pretty terrific bunch! I see kindness and laughter and silly sarcasm and support. It carries on 24 hours a day and we are international, worldwide baby! Oh my heart is so full of warm fuzzes! Then I come to find out there is a real interest in The Fibromyalgia Fun House t-shirts. I almost cried on the spot!

I am so blessed to have encountered each and every one of you along the way. I see a true need for this type of a support network and can't imagine what I was doing before it. Oh yeah, not that well! Yes we may bitch and complain and moan and whine but we do have Fibromyalgia after all! More to the point, though, we took the ownership of the pain and mood off ourselves and transferred it to the "Purple Pain Code", and at the end of the day (or rant) always bring it back to the positive. So as I was slathering myself up in organic coconut lotion after my first HOT shower in 4 months (by choice) it hit me like a ton of bricks. We are the Grass-Roots founding members of The Fibromyalgia Crusade! I know this awareness campaign I keep talking about means little to any of you yet because I have had to keep everything secret while I secure my legal protection, but I have been hard at work over here preparing what I believe is going to take Fibromyalgia by storm. We are going to shock the medical community with the shift in our attitudes and demands. We are going to shock our friends and families with the shift in how we treat them and allow them to treat us. We are going to gain attention and validation and stop suffering in silent misery compounded by a complete lack of illness and life management. Why? Because this is so much bigger than any one of us alone. This is the power of momentum that comes from pissed-off patients that are organized and collected and given a voice. So stay with me my Fun House crew, and keep recruiting members. Be patient with this Fibro-girl over here that is still trying to be a good housewife and puppy-mom and patient as well, but know it is only a matter of weeks before we can start jumping up and down on the roofs of imprisonment and bring those babies down!

Thanks for joining,
Leah