Oh such a touchy subject, one it has taken me a year and a half and some 400 blogs to get the guts to confront head-on, but here it is. That S word far more horrible than any S word I have mentioned so far. Suicide. It is the leading cause of death among Fibromyalgia patients. I know my personal experience with the beast and I also have witnessed a barrage of fellow patients succumb to the dark and hopeless thoughts that can infect and consume one's mind. It seems nobody is immune. Far too often I see many devastating examples of what happens to a Fibromyalgia patient with miserable medical care, an apathetic family/social support network and a job they simply cannot do anymore. I have seen others with entirely too much on their plate racing through life at top speed with no idea how to slow down, careening toward imminent disaster. And sadly still I have seen too many simply in too much pain that continuing to live does not make any sense. It just hurts so damn much.
All of these are common triggers for Fibromyalgia patients to head down that fatal fork in the road. Living in constant and pervasive level 8 pain that everyone tells you to take Advil for is bad enough. But simply the fact you have been told to take Advil for level 8 pain just because they don't know the cause of it, now that is simply unforgivable. So we take our wounded selves to the corner and try and lick away the scars, the damage, the pain. But this is a pain that goes far deeper than muscle aches and stiffness and insomnia and all the other maladies that come with Fibro. This is total mental devastation.
I was the careening at top speed toward imminent disaster kind of Fibrate. And I sped, and I hit. It was 2006 and I had just been given the ridiculous diagnosis of Fibromyalgia. I broke because I was one sick girl still expecting, and expected, to accomplish what I had always done, but without the physical capabilities to do so. The entire medical system I had been raised to believe knew all knew nothing. I saw no other option than to get my husband to leave me so I could die without guilt. Nobody knew how to take my pain away, nor did they understand how bad it was. If there was no chance ever of improvement why on earth was I continuing to torture myself and those I loved with my pathetic, pain-filled presence? I was desperate, demolished, broken.
I can't tell anyone how to get out of that place, I can only tell you I was able to and I have seen countless others come back from it as well. Meds and therapy, lots of both, and that tiny little pit of Hope resurfaced in the bottom of my gut. It grew and grew because I watered her and fed her and verbally encouraged her to bloom. I ran circles around her chanting and praying and shaking medicine sticks in the air. Basically I told Hope she had to come back to me because it simply was not possible to live without her! Slowly, very slowly, I tried to figure out how to put my life back together again, but I knew that would not happen until somebody could figure out what the hell was wrong with me! So here we are five years later. I have researched it all and tried most therapies under the sun. And yes, there was actually something real wrong with me. I have improved but am still a shadow of my former self. Or am I? Am I actually discovering my true self, hidden and buried under all the junk life had thrown at me? Did getting sick slow me down enough to set me right? These are things we will never know but I am grateful to even be here today asking these questions. Hope did come back to hang out. Sometimes she comes and sometimes she goes, but her burning ember in the bottom of my soul cannot ever go out again, for I simply am not letting her go!
Thanks for joining,
Leah
This post took a lot of courage. I applaud you for speaking up.
ReplyDeleteDuring the time of DeWayne's illness and then after his death. I would wake up and say, "I have Hope today." So, the other morning when I woke, I giggled because I had a visual picture of me in the future with a child and I named her Hope... I am not saying that is what the future holds, but it is a picture that I have a future and my life is not over... nor is yours.
ReplyDeleteThis past week I went to a friend funeral who shot herself because she was ill. It hurts knowing hours before that we were talking. I knew what she was facing. It is hard to think about how people deal with illness. I know if DeWayne lived any longer I wouldn't be here because my health was declining rapidly. Now I am healthy, I have Hope.
Yes, it did take a lot of courage! I have been in more pain for the last month, and during parts of it, I just wanted to die! It appears that Hope has touched me once again! As of today, I am feeling better! I have been following you for some time, and I so appreciate your words and sharing your Hope! Thank you!
ReplyDeletethis is a wonderful, courageous post. There are times, for me, the hope disappears and I do think about this. Maybe some day I will have that beast completely gone.
ReplyDeleteHeather
This truly is a wonderful post. I too have know the monster of suicide, been there, tried, failed because I found hope also. It was little at first and a long fight of many years later that I have no fear of those feelings again coming back at me. I think thru the struggles we truly may just be finding who we really are. I get so tired of being tired, tired of being in pain, tired of waxing and waining medical support for fibro, but I will not cave, as I understand it really is a real syndrome, I am not alone, and it has been a tremendous help for me reading the blogs. I think the more we can associate with others who feel the pain, know the ups and downs of it, it becomes easier to accept this is what life is for me, and I know I will accept each day for what it will be, and deal my best with it. If it is one the very overwhelming days, well I know I will quietly exist in my home, avoid taking in negative stuff I don't need, and if I have to, block out some people that just can't be in my day. The worst struggle I still find is getting my physician to embrace fibromyalgia for what it can be in any one of his patients. Tends to think one therapy that just happens to work so well for another patient will help....but then the light bulb goes on for him as he remembers me - the patient who is intolerant to most anything there is pharmaceutical, all natural. Some checkups I still feel like I am back at square one, even after 9 years under his care. I hold hope more education hits home to our physicians, unmistakeably, undeniably, fibromyalgia is real and complicates one's life big time, for lifetime. Thank you for all the blogs.....I am gaining back more and more of me, :)
ReplyDeleteMary Linda James - Facebook profile
10/20/2011
P.S. love my wristband - some ppl will ask what it means - HOPE!
It's really hard when fibromyalgia patients have no one supporting them. You are constantly changing moods and aren't able to do much sometimes. I'm lucky enough to have a husband who supports me no matter what. My advice to other sufferers is to get involved in a great church group. This also helps.
ReplyDeleteI have had chronic fatigue and fibromyalgia for most of my adult life. I am very tired of TRYING to find ANYTHING that will help me with my fatigue, headaches, body pain, jaw pain, joint pain, stomach problems, muscle weakness, and everything else that goes with it.
ReplyDeleteFive years ago, I was diagnosed with breast cancer and would have died, if I had not gone through chemotherapy, surgeries, and, radiation. I only did it for my loved ones. I wish that I had NOT gone through treatment and I would not be suffering today with fibromyalgia. I am in recession from cancer now. But, I am not exactly happy about it.
PEOPLE JUST DON'T UNDERSTAND.