Monday, April 25, 2011

The Cure For Fibromyalgia

At a social engagement not too long ago I met a friend of a friend that has Fibromyalgia. I was very excited when I was introduced to her to talk about it, The Fibromyalgia Crusade and all those other goodies that go along with someone you assume is of like circumstance. Well the excitement was completely one sided. She did admit to having Fibromyalgia but looked me dead in the eye and said she took some vitamin supplement or another and did not have any more symptoms. And that was all she would say. I went to my purse to show her one of our postcards and she stopped me before I even opened my bag, saying "Don't give me anything about it, I already know what I need to know". OKAY, I thought. I continued to try and engage her and she just looked at me like I was a complete idiot. She explained she had it for 30 years and had not suffered from symptoms since she started this supplement. I tried to ask her about how it started, what she felt the cause or "trigger" was. I was given a blank stare and she repeated once again that this supplement has taken all her symptoms away. She was looking at me like someone with strep-throat that was refusing to take antibiotics! Like the cure to this ailment was so obvious, easily obtainable and proven, I was just the moron that had missed the memo. It was an annoying and strange exchange and I wanted to shout at her, "You did not have Fibromyalgia, you had a vitamin deficiency!". But of course I could not do that so moved on to chat with other folks at the party.

I came home and researched this miracle cure for Fibromyalgia that you, I and the other 6 million people with Fibro in the USA have been missing out on. It was pure testosterone and illegal in this country! I have no idea how she gets her hands on it but as many of you know I spent months on high-dose steroids to treat the strokes I had last summer and am NOT A FAN of the side-effects. When I told my husband what it was he laughed and said, "Yeah, she kinda did look like a dude!". So sorry folks, no miracle vitamin for Fibro that I can recommend. But it was an interesting experience and really got me thinking. One of the most important components of true support is not forcing your ideas on others, not using your individual experiences as the rule and certainly not assuming everyone is like you. I have been approached by MANY claiming one vitamin potion or another has cured their Fibro and given them their life back. See they want my readers, they want YOU! They want my voice to shout out the validity of their multi-level marketing product, and when I refuse to agree that Joe Schmoe sitting in Texas has the cure for Fibro, but none of the doctors, researchers or scientists can even find the cause, I am told I don't want to get better.

It is the anger, hate and animosity coming from the Fibro community to the Fibro community that got me all hot and bothered once I published my blog and started to meet other patients. I saw so many tearing their fellow-suffers down because they could not agree on cause, treatment or cure. I personally have received far more hate and criticism from Fibromyalgia patients than anyone else in my efforts to spread awareness. And I believe this is a truly disabling component to the acceptance of Fibromyalgia as a real and viable ailment by both medicine and society at large. If the patients cannot agree, band together and form a united front, accepting the differences inherent in all of us, we have nothing to fight for our right to be heard with. It is such a shame folks like to spend more of their precious energy fighting with, bad-mouthing or criticizing other patients because of their chosen method of dealing with their Fibro. Many have found ways to manage it, live with it, even contain it so they can live the rest of their lives in a relatively normal way. But just because one person has found their magic potion does not guarantee others will obtain the same relief. It is with an open mind, giving heart and commitment to honesty we can all better serve our fellow Fibrates, and ultimately ourselves.

Thanks for joining,
Leah

14 comments:

  1. Nice post. It is so important not to take a one size fits all to treatment. Wow, testosterone. That does have some not so good side effects :) ~ Peter

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  2. Excellent post, Leah and I can relate to how you feel! During a recent teleconference, which I blogged about last week, I felt disappointed in how the NRC presented their information. Essentially, they said all doctor's could do was prescribe medications, alternative therapies caused flares and they (the NRC) provided new "cutting edge" technology. On the other hand, they did make some valid points regarding functional neurology. But still I felt like they were selling rather than informing.

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  3. I completely agree with you Leah. Thank you for sharing--Dena

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  4. So many are so desperate to find something, anything to make the pain, the fatigue, and the fog go away that they are willing to try anything to make it happen. In my own searches, I've had steroids (ewwww), gueyfenisin, Lyrica, and other things. The only things that have even worked a little, for me, are Cymbalta, oxycodone, and flexoril. And lots of rest. I've given up my dreams of getting a bachelor's degree (I'm 5 classes away but the fog is what's doing it) before I die (I'm 54 now). I sit to watch the grandkids play. It has been so very hard to do even the least thing. My cooking is now on a stool with assistance. I'm so fortunate to have a loving husband who has stuck by me through all this stuff, this year is 18 years with me.

    We need to stick together, work together, laugh together, and make this happen together. I want a cure before my grandchildren have a chance to contract it.

    Charlayne Denney

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  5. Well stated Leah! I am on the search for something to make the quality of my life better too. We encounter so much negativity that challenges the validity of this nasty illness. Like my grandmother says "Different strokes for different folks" so we should support and empower each other because each day there is a new challenge that awaits. Hugs. April

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  6. Well said Leah, I have to whole heartedly agree with you on many mutileval marketing ploys.
    Thank You, Cal

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  7. Wonderful post Leah. I too have encountered this resistance and I do not understand it at all! I guess we are a society of instant fix with a pill and we do not want to hear otherwise. Do not give up Leah. Many of us are here behind you. We must give each other the courage to stay the course and be heard. Blessings.

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  8. I would love to have a conversation with you young lady.

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  9. Wow.... I've been treated this way so many times!With all the opinions of the"ex-fibros" and some family members and people that have all the answers and causes of why I have FM,and they have just the thing to "cure" me (usually a miracle product that cost a zillion dollars a month and a "contract" with the multi-level company they are promoting ) apparently thats all we need to do to be "cured".Not that I'm glad you are treated this way,but it's good to know I'm not the only one this happens to! We definitely need more Fibromyalgia Awareness! Keep up the good work!

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  10. My dear brothers and sisters, I am about to tell you how God through the help of an herbal doctor saved the life of my only brother. Fredrick Machel is my name I live in Boston, USA. My brother's name is John Machel. My only brother four years ago fell ill, and at first was diagnosed of high fever which resulted into him having critical health issues. Two years ago, he was diagnosed of FIBROMYALGIA he was having chronic muscle pain, fatigue, sleep problems, and painful tender points or trigger points, we tried so many medications but none worked for him. I search the internet for possible cure but none was found until i came across a note of testimony made by a man named James Watt on the internet where he claimed that a herbal doctor by name Doctor Uwadia Amenifo cured his cousin of a chronic disease that is worst than FIBROMYALGIA. So I tried to reach the testifier James Watt to ask if there could be any hope from this herbal man towards assisting my brother to finding cure to his ailment. So he emailed me after two days and gave me the contact details of the said doctor. So I emailed the doctor and explained to him what my only brother is going through. And he said no problem that my brother will be healthy again. At first I doubted him because he said it so easily, and at this stage I was so curious and I asked him what he meant by my brother will be healthy again. So then he told me that he have some powerful herbs that can cure FIBROMYALGIA. To cut the long story short, I akin to his advise and counseling. So he told me all I would do, and after all arrangement was made, he started sending herbs to my brother. Behold just two weeks after my brother started using his herbs he began to improve, and as I speak to you today my brother is healthy and free from FIBROMYALGIA. So when I see that my brother have regained back his health I contacted Doctor Uwadia to tell him of the good news. And he asks me to help tell people across the world how powerful his herbs can be. And that is exactly what I am doing now. Brothers and sisters i want you all to help me say a big thanks to God and also to Doctor Uwadia Amenifo. He is really a wonderful herbal doctor. So in case you wish to treat yourself or your close one of diseases please i strongly recommend Doctor Uwadia Amenifo to you all. You can either reach him on his email (doctoruwadiaamenifo@gmail.com), or you call him on his cell (+2349052015874). God bless you all.

    ReplyDelete
  11. My dear brothers and sisters, I am about to tell you how God through the help of an herbal doctor saved the life of my only brother. Fredrick Machel is my name I live in Boston, USA. My brother's name is John Machel. My only brother four years ago fell ill, and at first was diagnosed of high fever which resulted into him having critical health issues. Two years ago, he was diagnosed of FIBROMYALGIA he was having chronic muscle pain, fatigue, sleep problems, and painful tender points or trigger points, we tried so many medications but none worked for him. I search the internet for possible cure but none was found until i came across a note of testimony made by a man named James Watt on the internet where he claimed that a herbal doctor by name Doctor Uwadia Amenifo cured his cousin of a chronic disease that is worst than FIBROMYALGIA. So I tried to reach the testifier James Watt to ask if there could be any hope from this herbal man towards assisting my brother to finding cure to his ailment. So he emailed me after two days and gave me the contact details of the said doctor. So I emailed the doctor and explained to him what my only brother is going through. And he said no problem that my brother will be healthy again. At first I doubted him because he said it so easily, and at this stage I was so curious and I asked him what he meant by my brother will be healthy again. So then he told me that he have some powerful herbs that can cure FIBROMYALGIA. To cut the long story short, I akin to his advise and counseling. So he told me all I would do, and after all arrangement was made, he started sending herbs to my brother. Behold just two weeks after my brother started using his herbs he began to improve, and as I speak to you today my brother is healthy and free from FIBROMYALGIA. So when I see that my brother have regained back his health I contacted Doctor Uwadia to tell him of the good news. And he asks me to help tell people across the world how powerful his herbs can be. And that is exactly what I am doing now. Brothers and sisters i want you all to help me say a big thanks to God and also to Doctor Uwadia Amenifo. He is really a wonderful herbal doctor. So in case you wish to treat yourself or your close one of diseases please i strongly recommend Doctor Uwadia Amenifo to you all. You can either reach him on his email (doctoruwadiaamenifo@gmail.com), or you call him on his cell (+2349052015874). God bless you all.

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  13. I have just been diagnosed with fibromyalgia on December 5, 2016. I had the symptoms for a long time and it became unbearable. I am a Head Start preschool teacher and my attitude changed, short tempered. It was time for me to retire. I am tired all the time and all I want to do is sleep. I don't sleep well at night. I stopped taking naps because I am able to sleep the whole night. I know that I have to take one day at a time. This is not a mind over matter in this situation. I had support from my doctors, family and friends. i looked further for an alternative treatments, and then a friend of mine told me about Health Herbal Clinic in Johannesburg who sell herbal formula for diseases including FIBROMYALGIA disease, I contacted the herbal clinic via their website and purchased the fibromyalgia herbal remedy. I received the herbal remedy through DHL couriers within 8 days and i immediately commenced usage as prescribed, i used the herbal remedy for about a month and 1 week, my condition has greatly improved, all my symptoms including Chronic muscle pain, Abdominal pain, nausea, I am fibromyalgia free! contact Health Herbal Clinic via their email healthherbalclinic@gmail.com or visit www.healthherbalclinic.weebly.com

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  14. Nice post. Fibromyalgia is a syndrom and it is a long-term condition that cause pain all over the body. I read this whole post and I like this. We provide the best fibromyalgia treatment based on stem cell therapy product. Fibromyalgia treatment

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