I am not sure when I realized I was not sleeping. I think I
had to start dreaming again to fully understand dream state was a place I
wasn’t visiting. But by then I had all sorts of problems and was completely
coming undone. I could not sleep but was exhausted. Slept ten hours a night
only to wake up more fatigued than when I went to bed. Simultaneously suffering
from insomnia and a REM thirst I could not quench, I was in an awful state of
purgatory. Tylenol PM became my best
friend, but eventually that stopped working. I got a prescription for Ambien and a referral for a sleep study.
I slept with Ambien, enough to not melt into a puddle of mush at my retail job.
But not nearly enough to feel even close to good. Then the sleep study lady was
wont to prescribe me any more of the sleep medication. I begged and pleaded,
explaining I could not work if I could not get rest. My brain was not shutting
off. Why wasn’t she understanding this? But at this point in my life even
working my scaled back job with shortened hours was becoming next to
impossible.
So I went and had myself a good old fashioned breakdown. Had
to cancel the sleep study scheduled for the next night but did find something to
knock me out, Neurontin. It was
originally prescribed by my psychiatrist to calm my over-firing neurotic central
nervous system. It helped with anxiety and sleep and eventually pain, too. But I
did not dream again, really reach the deep stage of sleep where the body
repairs itself and builds immunity and the brain filters it’s subconscious
through strange mashed up images, for a while. It took lots of treatment and
medications.
And then one night I dreamed. It shocked me, for how had I
not realized I was missing them? Things started to fall into place. There may
have been that undiagnosed sleep problem for years, long before I ever felt
symptoms! My poor body had chugged along as best it could without the ability
to repair itself or maintain a healthy immune system. Until it couldn’t anymore.
I spent years sleeping, ten to twelve hours a night. I had a lot to make up for
and although I felt like a zombie who was sleeping my life away, something
worked. My pain let up and never returned to the degree I suffered before
getting lots and lots of sleep and trying different medications and treatments. Now it's plain as Christmas on December 25th when I don’t sleep. I feel
terrible. My mood, my pain, my desire to participate in life. It all tanks.
Before I slept and woke up exhausted. Now, for the most part, I wake up mildly
interested in tackling this thing called life.
Thanks for joining,
Leah
I finally tried melatonin and discovered that 10 mg a night gives me a decent night's sleep. First time in my 47 years on this planet that I've been getting decent sleep.
ReplyDeleteI take the melatonin, benadryl, and 2 ambiens every night to sleep. For anyone else, this would probably be a drug overdose. I'm immune.
Chelle
www.lifeonthedomesticfront.blogspot.com
Great post! I originally began using a combination of Melatonin, Calcium, and Magnesium for sleep, but it wasn't long until I built up tolerance to them. Moved onto Tylenol PM, then Ambien, and now Temazepam. For some reason I just keep building up tolerance after a month or two :( So frustrating!
ReplyDeleteBig fan of the Fibromyalgia Fun House, by the way! :D
I had a sleep study done three years ago. The study showed that I never reached REM sleep and aroused over 130 times. My primary Doc was satisfied that I didn't have sleep apnea and didn't look any further into the results. I know everyone responds differently to the treatments available, but can anyone share what has helped them? I was diagnosed with Fibromyalgia around the same time.
ReplyDeleteStill A Zombie
I had a sleep study because I was sleeping 16-20 hours of unrefreshing sleep a day. After the first overnight, they called me and had me do the night and day MSLT, where they let you fall asleep during the day, then wake you up after 15 minutes. If you dream in REM sleepduring those short naps, you have narcolepsy. I have narcolepsy and what is weird if, if you have narcolepsy, you have a 50% chance of having fibro, also a 30% chance of having IBS, which is the third part of the triangle. You probably should have a MSLT to find out if you dream right away when you go to sleep. The good news about having fibro, I get Xyrem for my narcolepsy, which helps a lot with the fibro. Xyrem makes you sleep in stage 4 deep sleep the correct amount of time. The first morning after taking the xyrem, I literally popped out of bed before the alarm went off. I found in my sleep studies that i wake up 16 times an hour, so I never get into deep sleep. The Xyrem forces one to sleep better. I can remember dreams where I told myself in my sleep, "Better hurry up, the Xyrem is wearing off." Then pop you are awake. Xyrem is my drug of choice. wahela
DeleteWow, I always dream during naps...I could not figure that one out. Why not at night? And I do have IBS! Thank you so much for the info. Now, if I can get my Doc to listen!
DeleteThanks Anonymous & Thanks Leah
Leah, do you think that Ambien sleep is restful and healing sleep? I have taken it for years and can't sleep without it but I, too wake up fatigued and in pain. I don't dream taking it. I am wondering if it does more harm than good but I don't know if I could stand the withdrawal if I tried to stop taking it.
ReplyDeleteI wake up constantly at night because I can only lay on one side for an hour or two. I tried Ambien but it gave me such bad nightmares and it didn't help much. Now I take my nighttime sinus medicine and advil PM. It helps some but nothing else really helps.
ReplyDeleteHeather
@Chelle I also tried melatonin, but it was not for me. It made me feel very, very groggy. Which brand did you purchase?
ReplyDelete