Friday, June 17, 2011

How To Get Better From Fibromyalgia

I have been getting a lot of questions lately regarding how I got better from CFS and have managed my Fibromyalgia. People are curious, they want to know. There is so little real information out there. There are lots of things people will sell you, claiming it will soothe your aches and pains. Sometimes it works, sometimes it doesn't. There are lots of people that say they were "cured". Maybe they were, maybe they weren't. But the only universal truth I can accept is Fibromyalgia seems to have a few different sources and is remedied in each person according to the source of their Fibromyalgia. Last August I started a blog people seemed to relate to. That led to a support page for folks that want to talk to each other about Fibro. Then came the awareness campaign, a group to belong to and gain strength from. I built a website, a one-stop shop that seeks to legitimize Fibromyalgia to the common person. Every statistic and description linked back to reputable sources with the click of a button. And sadly even after doing all that I cannot tell you how to get better from CFS and manage your Fibro. I can only tell you how I did. 

I have laid it out in a very long blog to the right of this page under "Must Read Blogs". How I Survived Fibromyalgia, One Woman's Story. All the gory details surrounding my quick descent to disabled and slow ascent to a whole lot better but still not 100%. I am gathering up to write a book, really digging deep and retelling the story of this war I have been fighting since 2005. But I can only speak to what happened to me, not anyone else. For they still have not found a common cause, therefore determining a common cure is extremely difficult. So we mutter around miserable and in pain. Misunderstood and blamed, defamed and estranged.

What does Fibromyalgia need for it to cease to overthrow our lives? What can we do to make this happen? We can work toward managing our symptoms with medication and lifestyle. We can huddle into puddled heaps. We can cry and moan and rage at the unfairness of it all. We can rise up and be strong when we can, and lie down and be weak when we can't. We can simply do our best. Life with Fibro is hard. I have no easy answers. Be strong and love yourself, knowing there are thousands out there just like you. They understand, because they feel just like you do.

Thanks for joining,


  1. thank you for writing about this, I've been surviving with this condition for 18 years.

  2. The title of the blog is "How To Get Better From Fibromyalgia." Yet, you don't really give a solid answer? Your advice is nothing new. I guess expected more.
    Doesn't matter. You only show comments that are flowery and praise you. not the comments that ask questions about your reason of thought.

  3. The most important symptom of fibromyalgia is pain. The pain is diffuse, affecting a large part of the body. On a few occasions pain is widespread, and in others in an area determined as the neck, shoulder, lumbar spine and from there spread. Fibromyalgia pain can be described by the person who suffers from such as burning, discomfort or malaise, muscle spasms can occur sometimes.

    Agustin Legido

  4. I too have had Fibro since 2002. But that is when stress hit, I went through menopause and it threw off, cortisol,thyroid,and other very important endocrine functions. Neurological and endocrine problems seem to be what had caused mine one thing is thrown off and everything else follows. It is a multiple illness of the neuroendocrine and neurological system. It can only be treated by helping each system that is not working!! I am bedridden now, but my treatment is very slow and seems to be getting worse. Now back surgery. I pray for a multi-discipline treatment with a good outcome!!