I have been getting a lot of questions lately regarding how I got better from CFS and have managed my Fibromyalgia. People are curious, they want to know. There is so little real information out there. There are lots of things people will sell you, claiming it will soothe your aches and pains. Sometimes it works, sometimes it doesn't. There are lots of people that say they were "cured". Maybe they were, maybe they weren't. But the only universal truth I can accept is Fibromyalgia seems to have a few different sources and is remedied in each person according to the source of their Fibromyalgia. Last August I started a blog people seemed to relate to. That led to a support page for folks that want to talk to each other about Fibro. Then came the awareness campaign, a group to belong to and gain strength from. I built a website, a one-stop shop that seeks to legitimize Fibromyalgia to the common person. Every statistic and description linked back to reputable sources with the click of a button. And sadly even after doing all that I cannot tell you how to get better from CFS and manage your Fibro. I can only tell you how I did.
I have laid it out in a very long blog to the right of this page under "Must Read Blogs". How I Survived Fibromyalgia, One Woman's Story. All the gory details surrounding my quick descent to disabled and slow ascent to a whole lot better but still not 100%. I am gathering up to write a book, really digging deep and retelling the story of this war I have been fighting since 2005. But I can only speak to what happened to me, not anyone else. For they still have not found a common cause, therefore determining a common cure is extremely difficult. So we mutter around miserable and in pain. Misunderstood and blamed, defamed and estranged.
What does Fibromyalgia need for it to cease to overthrow our lives? What can we do to make this happen? We can work toward managing our symptoms with medication and lifestyle. We can huddle into puddled heaps. We can cry and moan and rage at the unfairness of it all. We can rise up and be strong when we can, and lie down and be weak when we can't. We can simply do our best. Life with Fibro is hard. I have no easy answers. Be strong and love yourself, knowing there are thousands out there just like you. They understand, because they feel just like you do.
Thanks for joining,
Leah
