One day a friend mused she wished we had a code to communicate how we
feel, since as any Fibromyalgia patient will tell you there is no
continuity or routine to this illness. On Monday we are convinced
Fibromyalgia is gone, an over-exaggerated figment of the imagination.
Why on earth did we take it like such wimps? But not on Tuesday! On
Tuesday morning we wake up with absolute certainty we are dying, no pain
that great could possibly signify anything less, and we remember. Sick and tired
of complaining about her sick and tired all the time, my friend needed a
way to communicate her pain without, well, bitching all the time. I
thought she was on to something and set out to
come up with a "code" which would accomplish this goal.
The Fibromyalgia awareness ribbon is
purple. Purple is a traditional color of royalty, the hue of the
Crown Chakra which is linked to the crown of the head, nervous
system and brain. It is representative of pure thought. The Purple Heart
symbolizes courage in the U.S. military and pride in Christianity, to
name but a few associations. A blatant blend of blue and red, it
embodies the yin/yang of stimulation and calm while assuming an
enlightened and distinguished reputation throughout history.
Psychologically purple is known to uplift and calm the mind and nerves,
reputed to offer a sense of spirituality and encourage
creativity. We are in very
good company with the color purple!
Using this color as an anchor I allowed my mind to
absorb purple in its infinite number of shades, tones and
hues. I traveled through this imaginative exercise and my instinct rang the lighter
the color, the lighter the symptoms, and the deeper the color, the more
raging the pain. So I painted a pretty little picture in my mind of
Fibromyalgia if it were viewed through a purple kaleidoscope. Lilac starts out
soft and light, and represents a pretty darn good day. Mulberry deepens
and intensifies moderately and marks the middle of the road. Not great,
yet not horrible either. Amethyst, one of the deepest shades of
purple, finishes the journey with raging pain and unbearable
afflictions. Well the idea stuck, and even became a source of
motivation. Patients were genuinely trying to figure out how to get
themselves to Lilac! Proud to report a day of reprieve they were also
understood when tearfully admitting to Amethyst, a day of defeat.
Too complicated! I won't spell them
right! I can't remember that! I have Fibro-fog! Oh plenty objections
certainly abound initially. But there is something off-beat, individual
and just plain silly about comparing
the wreckage this illness has made of our lives to flowers and
gemstones. It
somehow removes the ownership of the pain and forces it back on the
illness itself. But please, by all means, do not blame the actual
Amethyst stone for your pain. In fact I think Amethysts should be our
pride and joy! A jewel all our own to wear with pride. Display our
victory, the triumph over every Amethyst day from hell behind us, or
those which will someday come.
Thanks for joining,
Leah
If describing pain in a beautiful way exists, then this is it.
ReplyDeleteI too am trying to raise awareness of FMS, I am launching a web store on 7th March, and I am donating 25% of every Purple or shade of purple to UK Fibromyalgia. I am just starting out, but would be grateful for any advice.
my own blog is http://bananablossomyarn.blogspot.co.uk/
I feel inspired by all the fibro blogs out there, & want to make mine a success too.