tag:blogger.com,1999:blog-7505202305821415305.post5608835269662427607..comments2023-12-17T23:47:52.627-08:00Comments on Chronicles of F.I.B.R.O.: Down The Rabbit HoleLeah Tylerhttp://www.blogger.com/profile/09339986620263501997noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-7505202305821415305.post-84289776488576858472012-01-21T15:11:11.720-08:002012-01-21T15:11:11.720-08:00So well said! I am coming out of the nastiest flar...So well said! I am coming out of the nastiest flare I've had in years. Three major stresses on top of each other. Hang in there! LouiseAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-67944301184407957772012-01-20T20:32:10.683-08:002012-01-20T20:32:10.683-08:00I just found your blog and love it. Your insights ...I just found your blog and love it. Your insights into this journey is spot on. I have both fibro and arthritis and need to work full time after my husbands stroke. I never expected to be the main person working forever now but that is our new normal. Having Fibro makes it easy to feel down about it but I refuse to give this power over me. There are so many days that I struggle too and wonder why me? But then I just remember what my Mother told me a long time ago....Put on your big girl panties, slap a smile on your face and fake it until you make it! It's mind over matter and I matter. I have totally enjoyed reading your blog and how close to my own experiences they ring true. <br />I agree that most of us are harder on ourselves than anyone else would ever be. Why do we let our minds tell us what we would never say to a friend?<br />At our house - laughter is what gets us through and when I am having a really tough day and there are lots of them....I like to watch something funny and just make myself laugh. My husband is also great at making me laugh and that helps us get through the tough days.<br />Hang in there and keep smiling!<br />LauraG from MSPAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-51360975801143019512012-01-20T17:22:20.298-08:002012-01-20T17:22:20.298-08:00Leah, you are way too hard on yourself! Fibro is, ...Leah, you are way too hard on yourself! Fibro is, unfortuately, part of you now. You can't change that, so don't condemn yourself for it. It's not by your choice that you have been afflicted and it's not your choice not to be cured of it. You've resigned yourself to it a long time ago. You hate it, I hate it, but don't hate yourself because of it! You do what you can, when you can. Take care of YOU first! That isn't being selfish or self indulgent. You need to do that or else you will not be able to ever do anything else! You are almost always here with us and for us, and for that, I thank you! You've given all of us, the fibro family, a place to go.It's a bad day when there's no Leah. You work so hard on this fibro crusade. You have inspired so many of us here. Be good to yourself. As far as what anyone else thinks, well, the old adage applies: "Those that matter don't mind and those that mind DON'T MATTER!" Hugs and fields of lilacs to you Leah!Nancyhttps://www.blogger.com/profile/16054884057856958349noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-77611878822437316182012-01-20T16:00:21.399-08:002012-01-20T16:00:21.399-08:00I swear you must read my heart somehow everyday an...I swear you must read my heart somehow everyday and write about it! How do you do that??? I want to print out all of your blogs and read them everyday. You encourage me, Leah. Thank you. Thank you for being you. You're pretty damn awesome.Janet Christinehttps://www.blogger.com/profile/07000725527366873334noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-31749578047695392762012-01-20T15:35:28.397-08:002012-01-20T15:35:28.397-08:00Hi Leah,
Someone just shared your blog on FB. I&#...Hi Leah,<br />Someone just shared your blog on FB. I'm 63, but have had fibro. since I was 35. Hang in there! I once went to counseling for the feelings of not being enough, particularly in my mothering. The counselor asked if my children were clothed, fed, and loved. I replied, yes. She said, "Well, then you are a good mother." I must add that I had a helpful husband. <br />Blessings, HavenHavenhttps://www.blogger.com/profile/12980883030870157478noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-46416842483818652952012-01-20T15:16:30.272-08:002012-01-20T15:16:30.272-08:00I know how it is. I think it takes awhile to fig...I know how it is. I think it takes awhile to figure it out. I started out a few spring evenings a few years ago, determined to increase my walking distance with my dog one block per week. Because I knew I could get to the park, (2 blocks), then I would sit and rest, then walk back home. so remember, every week I was going to increase a block. Well, at the end of October, I was still walking to the park, sitting and resting and then barely making it home. My rheumatologist explained that there is a wall in fibro, and it is very difficult to break through it. So I have lowered expectations and now walk to the park, rest then walk home. I have had to quit work, I've applied for SSD, and I rest a lot. and without the stress, without the pain from trying to work, I feel a whole lot better. Do what you can, and don't expect to be an Olympic marathon runner. Having fibro is like swimming upstream and looking over at the other people, who are wading and playing in the shallows. I always wondered why I came home and collapsed, yet other went shopping, bike riding, cooking, mowing the lawn, etc. good luck to you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-8397545392482219992012-01-20T15:11:04.998-08:002012-01-20T15:11:04.998-08:00Been there, done that...This to shall pass, this t...Been there, done that...This to shall pass, this too shall pass. Sucks while it's going on, but I can't stress enough, THIS TOO SHALL PASS. I know you know this, but it sometimes feels better to hear it again....... :)Lenéenoreply@blogger.com