tag:blogger.com,1999:blog-7505202305821415305.post4129128179371493359..comments2023-12-17T23:47:52.627-08:00Comments on Chronicles of F.I.B.R.O.: Dying Inside, AgainLeah Tylerhttp://www.blogger.com/profile/09339986620263501997noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-7505202305821415305.post-82106590070357229932018-02-08T18:32:00.586-08:002018-02-08T18:32:00.586-08:00Sending you love and gentle hugs ❤Sending you love and gentle hugs ❤MightyAphroditehttps://www.blogger.com/profile/09862783411833715728noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-85862970115641925202018-02-06T13:22:41.979-08:002018-02-06T13:22:41.979-08:00You have put into words how I feel but too scared ...You have put into words how I feel but too scared to say it out loud. Thank youkcblues2https://www.blogger.com/profile/13410866299118032167noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-12322470561418269502018-02-04T22:21:54.655-08:002018-02-04T22:21:54.655-08:00Like the others who have commented, I appreciate y...Like the others who have commented, I appreciate your honesty in the ups and downs. I love hearing another's struggles and triumphs, and it gives me hope and also validates my experiences of successes and failures and that it is hard to get back up, but we drag though and keep trying even when we don't want to because we refuse to let this dang disease win the battle even when it does win some fights. You can do this - one more time. Thank you for documenting "our" journey. Shawnanoreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-33871896189903975292018-01-26T22:51:40.204-08:002018-01-26T22:51:40.204-08:00Thank you Leah, I am glad you are posting how you ...Thank you Leah, I am glad you are posting how you feel. Nobody understands unless they have a chronic condition. In my family they expect you to get better or move on from talking about it or being unable to join in. I understand how you feel and you express it beautifully. Please keep posting as we all want to keep reading. Sending you love from Australia. XxLeehttp://www.fibrofiles.netnoreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-36434287983086823812018-01-26T22:45:57.666-08:002018-01-26T22:45:57.666-08:00I I hear you martingale, the constant tinnitus can...I I hear you martingale, the constant tinnitus can become wearing. Keep in mind in Australian Aboriginal culture we with tinnitus are wise! I have 3autoimmune conditions and fibroLeehttp://www.fibrofiles.netnoreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-87993873821275552782018-01-25T18:48:46.925-08:002018-01-25T18:48:46.925-08:00So sorry to hear that you are feeling this way. Yo...So sorry to hear that you are feeling this way. You have touched us with your honest description of what it is truly like to live with this.<br /><br />I have been sick since September and just finished the 5th round of antibiotics. My doctor made me take a week off and just rest. Hopefully this will end this for me.<br />Sending you gentle hugs <br />Laura Guggenbergerhttps://www.blogger.com/profile/18283572455639434307noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-23879065337272092612018-01-24T06:30:33.458-08:002018-01-24T06:30:33.458-08:00I understand...I am 12 yrs into Fibro. It sucks. B...I understand...I am 12 yrs into Fibro. It sucks. Being that we have had a really COLD winter I have suffered so badly. Doc just upped my Gabapentin. We will see what that does. I did make it out last night to go to visitation for a friends mom and I road with a couple other friends, we talked about how I went from being a social butterfly to not being that in just the last couple of yrs. It really is not fair. Hang in there....maybe things will change. Pamhttps://www.blogger.com/profile/10211965720334593365noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-21171886432807325232018-01-24T04:39:15.755-08:002018-01-24T04:39:15.755-08:00this hit deeply.im also fighting SAD with fibro an...this hit deeply.im also fighting SAD with fibro and I'm lost.all I want to do is try and sleep but then I'm mad at myself for sleeping my life away.mitch1066https://www.blogger.com/profile/01005849905289388643noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-75989345728811144942018-01-23T20:42:21.140-08:002018-01-23T20:42:21.140-08:00I thought I was healed. Silly me. Just diagnosed...I thought I was healed. Silly me. Just diagnosed with my 4th auto-immune disease, Frontal Fibrosing Alopecia. This one will take my hair, no cure, no treatment. And I've developed Tinnitus. I don't know why I keep moving forward. Seems strange to keep going. This noise in my head will surely drive me crazy since there is no good news anymore.Martinigalhttps://www.blogger.com/profile/14950344039221305341noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-54419998069762773082018-01-23T15:59:29.267-08:002018-01-23T15:59:29.267-08:00This really touched my heart. I feel exactly the s...This really touched my heart. I feel exactly the same way. Thank you for sharing. SBeckMomhttps://www.blogger.com/profile/14784140063835841391noreply@blogger.comtag:blogger.com,1999:blog-7505202305821415305.post-71565717909895918052018-01-23T15:19:50.553-08:002018-01-23T15:19:50.553-08:00Always here if you need a friend...You will surviv...Always here if you need a friend...You will survive, because letting Fibro win would be an even bigger loss then the life you had before Fibro! Vicki Bnoreply@blogger.com