Every Saturday morning for the last 10 or so years I have gotten up early and gone to work. Retail does not give you much of a break and upper management always thinks Saturday is the busiest day. Then when I went freelance I super had to work on Saturdays, for I could not afford to be picky and turn down any work, no matter the day of the week. I would meet and greet clients and explain, demonstrate and sell prestige skin-care and makeup. It was fun, certain aspects anyway, but physically grueling and weekend-absorbing and, well, retail! Face to face with the citizens of a major metropolitan city and an abundance of international tourists, it was never boring or ever the same. It was a merry-go-round of activity, energy, excitement and just pure pulse. It calmed down a bit when I moved to Arizona but for the most part the job stayed the same. Now I work for me and Saturday is a blog day, but it is also a hang out with the husband, take care of business, tend to the family, shop, play, sleep-in and relax kinda the weekend day. I like this arrangement much better!
Self-employment is fabulous. The new, fresh, virgin experience of starting a business from the ground up is bountiful with flexibility but slow with results, at least at this stage in the game. It truly is an exercise in self-discipline. Especially when pain creeps in. But we have built something real here, friends. We are going to get the Fibromyalgia word out if it is the last thing we do! We have started and are continuing to do many things to change living with Fibromyalgia. We have our own Purple Pain Code that many of you have shared with your families, making communication easier. We have a support site on Facebook, The Fibromyalgia Fun House, we have a Doctor Appointment Packet for sale with resources to find a new doctor if your current MD is not working with you to manage your symptoms, so you can live your life. We are boycotting those that refuse to do this. We have our own wristbands to wear, raising awareness and uniting us at the same time. We have postcards explaining The Fibromyalgia Crusade you can print out to hand out as a way to inform others you are part of a community bigger than yourself. We will be selling t-shirts shortly, the order HAS been placed, I promise!
But above and beyond any of that we have found a community to be a part of. A community that just get it and you can lay down your armor and be yourself. You can bitch and complain 'cause sometimes there is simply no one else to listen, and we are here. You can be fun or silly or positive, for that is how you wear your Fibromyalgia and we welcome you! You can do anything in between, life with Fibro is tough as nails. Sometimes people have even become real life friends, or even best friends, the power of finding true understanding is so strong. So we march on, Fibro soldiers. We keep going and grabbing new opportunities as they walk by and know we will one day be victorious.
Thanks for joining,
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